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Arizona mom creates Elf on the Shelf in wheelchair for daughter with rare genetic disease – ABC15 Arizona

When Stella Lackey, 2, appears at Bean the Elf, her Elf on the Shelf doll, she sees an elf That seems Similar to her.

Bean the Elf makes use of a purple wheelchair and makes use of pink ankle-foot orthoses, Similar to Stella, who has spinal muscular atrophy (SMA), a genetic illness that impacts her motor carry out.

And when Bean the Elf does completely different actions by way of December, he does issues that Stella does, like going Mountaineering at occupational remedy and using a nasogastric tube, which carries meals and medicine to the stomach by way of the nostril. However, Bean the Elf’s tube is Full of scorching chocolate.

It is all As a Outcome of of the creativity of Stella’s mom, Samantha Lackey, who said she needed To make sure that every thing her daughter noticed in Bean recurrented herself.

“I do not assume she even second guesses thOn the elf is in a wheelchair because That is simply what she’s so used to,” Lackey, of Phoenix, Arizona, tprevious “Good Morning America.” “For me To have The power To mirror this little elf Collectively with her character, I really feel she actually respects it.”

Stella was recognized with SMA as a 1-month-previous and acquired her first wheelchair, which she calls “wheel wheels,” at 9 months previous, Based mostly on Lackey.

She said when she and her husband gave Stella her first Barbie doll, who additionally makes use of a wheelchair, they noticed her confidence develop. Since then, They’ve made A lot extra of an effort To Guarantee Stella is recurrented Inside the toys she performs with and the Kinds of e-books and reveals she sees.

“As a mom, I used to be apprehensive about …….


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